6/10/2023 0 Comments Scid symptomsAnd so yesterday after 32 years of feeling quite alone with SCID ADA, I felt a little less alone and a little less rare. I didn't feel like I was the only one experiencing this kind of pain with my condition. And somehow, while I was disheartened to hear she was experiencing those things, I felt so good. She said she also struggles with chronic pain and lung issues. We wondered, what's going to happen to us, 5, 10 years from now? Or why is this specific symptom happening? There was no way to know what was "normal."Īnd yesterday, by the means of some higher power, a 33-year-old with SCID ADA joined our online group. Just knowing one other person my whole life, still felt a little isolating, because we both knew others were out there, but little effort was made to connect the two of us with them. The anxiety, worry, and other associated symptoms make it hard to carry out day-to-day activities and. 5 Many people with GAD also experience symptoms such as sweating, nausea, or diarrhea. Many of the people living with SCID-ADA are young children. In children, the worry is more likely to be about their abilities or the quality of their performance (for example, in school). And for that, honestly I am grateful, because I know many have not had the opportunity to connect with someone else who has their rare condition. I can’t really be alone in thinking that right? #ChildLoss #PTSD #Depression #Anxiety #SevereCombinedImmunodeficiencySCIDĪfter being diagnosed with #scidada at 2 years of age, I have only known one other person with it who was around my age. WTH! A grandfather and Dad saying it’s time to allow yourself to heal and putting his stuff away will help?!! As my sons primary caregiver through his life/illness and treatment, that’s not going to make it better. The results of this was an “intervention” of sorts with my father and husband who state that it’s time for me to buy my Sons belongings away and allow myself to heal, especially since we’re starting over with this move. *Now the beeping and hospital sounds have stuck with me since he passed but I’ve had someone else over as well to make sure I wasn’t crazy* Our new a/c intake sounds like his oxygen machine and there’s a weird beeping coming from next door that mimics his PCA pump on his IV pole. So after a very stressful move over the weekend, that’s still not complete, I’ve had back to back massive panic attacks/ PTSD flashbacks regarding my Sons passing 01/2017.
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